All Things Endo

Advocating For Yourself

First off let me start this by saying that I LOVE MY MUG!!!
I have been wanting this mug since the day I started my Rea Dunn collection, however it was only available in the states.
One of my best friends got it for me for my birthday and I am in love!!

Now for the reason why I am here;

Let’s talk about advocating for ourselves for a minute. ⁣

We advocate so hard for ourselves for proper surgical treatment, for proper care and guidance, but it seems that at the moment we get that surgery date in our calendar our self advocating selves quiet down. ⁣

And now most of you are probably thinking, obviously we stop fighting for what we want because we have obtained what we came here to do and get. ⁣
Would you think I am crazy if I said you’re wrong? ⁣

We have so much knowledge in regards to the gold standard of care.⁣
We have so much knowledge on excision vs ablation.⁣
We have so much knowledge on all the possible medications our doctors can prescribe to us.⁣

We have limited information as to what ACTUALLY happens during surgery.⁣
What tools are being used.⁣
What is going to happen in pathology to find the proper answers.⁣

There is so much more to the puzzle.⁣

With the help, support and guidance from a fellow science lover, Kate over @endogirlsblog helped me continue my advocacy last night. ⁣

After discussing An article shared in the extra pelvic Facebook page about the pathological findings of thoracic endometriosis, it got me thinking. ⁣

So naturally, as I do…I emailed the head of the pathology department at the hospital that I am having my surgery at on Thursday.⁣

I asked the questions that I wanted the answers to. ⁣
I asked the criteria of process for getting a positive diagnosis on thoracic endometriosis as there are 3 factors included. ⁣

Thoracic endometriosis has been known to be difficult to get a positive diagnosis on, in speaking with fellow thoracic patients as well as literature I have read, it’s not as easy to diagnose as pelvic endometriosis. ⁣

This surgery has been a long time coming, and a pathology report of “inconclusive” just won’t sit well with me. ⁣

So I am here to tell you to advocate for the answers you want even after surgery.⁣
Advocate to press for more answers if you’re unsure or unclear.⁣
Ask the questions, and if someone doesn’t have the answer than find someone who does. ⁣

No one will fight for your health except your self. ⁣
Knowledge is power my friends.⁣

By yellowbowsxo

Figuring out how to raise two human beings, while managing an invisible chronic illness.
Follow along this crazy journey I call life.
Mom of Two Boys
Pelvic & Thoracic Endometriosis

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