Categories
Motherhood

Well here we are

We made it to Rhode Island.

The drive here was hard, like really hard and I am not going to lie about that. My anxiety was out of control with the idea of sitting in a car for 9+ hours with 6 other people plus my children and the same position.

How was my body going to respond to it? How was my body going to manage it?
Mother’s day weekend I barely made it to my mom’s house 1.5 hours away in a car, how will I honestly manage to make it over 9 hours.

But I did;
The upside of it all was that there was a plug in front of my seat, a plug for my heating pad.
My saving grace in the whole car ride and a peppermint tea to help with the nausea.
And we made it, we made it safely and soundly and that is all that matters!

My In laws came with us on this trip since we were coming to visit their side of the family, and they know of my disease.
I have always been open with them about it from the start, but they haven’t seen it all happen first hand.
They have never seen the full effects of a flare, they have never seen the struggle and that all changed this week.
I was nervous to say the least, how do I keep a brave face of for 7 days straight when I am around family 18 hours a day, and the reality in that is; you don’t.

I have been managing my flare this week with my heating pad & ignoring it as much as possible.

We have done a lot of walking and exploring and so far my favorite place we have gone is some vegan restaurants in the heart of the downtown area.
We went out to source a vegan place and a place called By Chole in providence Rhode Island was AHMAZING!
From the décor, atmosphere and food it was amazing.

Getting to spend one on one time with my husband and boys has been amazing! No time restrictions, everything this week has been fairly lax with the boys and they love the freedom.
The memories we have made this week so far have been amazing, and we still have 3 more days to make more.

Categories
Motherhood

Its Rainbow Day

It is rainbow pride day at their school today. Their school has their pride flag flying high this morning, in lieu of the Canadian flag. 

I have always been an open minded person and mother. 

There isn’t much in our home that doesn’t get talked about or discussed openly and honestly.

I think with having a female reproductive chronic illness, there isn’t much left in me that I find “taboo” considering I’ve spent a good portion of my life openly talking about my uterus and all its issues. 

From the moment my children were born wether they understood it or not I’ve told them that, you love who you love and that is all that matters. There is no right or wrong way to love, as long as you are kind, respectful, happy and loving; those are the only things that matter.

I make comments often;
“His husband or wife will be so lucky one day”
“He’s going to make a fabulous husband to his partner” 

and often get applauded for them, which is great but it should just be how we raise our children. 

Once they got a little bit older and could understand things more we talked about all the different kinds of families;

 
some families like ours have a mommy and a daddy.
Some families have one mommy and no daddy.
Some families have 1 daddy and no mommy.
Some families have 2 mommies.
Some families have 2 daddies.
Some families don’t have mommies and daddies and they have grandparents or other adults who love them just as much as their mommy and daddy loves them. 

Needless to say they found this fascinating.

They didn’t seem to find the fact that some families have 2 mommies or 2 daddies fascinating, I honestly don’t even think it registered as anything different.

They were fascinated, upset and didn’t really understand how some kids just like them don’t have a mommy or a daddy. 

“what do you mean their mommy and daddy aren’t there? They live with their Nanna and papa all the time not just for visits”

So that opened a door to a whole other conversation.

I also don’t gender characterize things.
They like what they like. 

My oldest is OBSESSED with machinery, engines, tools and doing whatever dad is doing; but he also likes being a unicorn and the colour purple. 

My youngest is sensitive and sweet and would prefer to do a craft or bake than be in the garage with tools, he loves trucks and the colour blue. 

– it all doesn’t matter. 

They are who they are and they like what they like.
Today we didn’t talk about it being pride day at school.
I explained it was rainbow day, so we need our bright colour shirts and I asked if they wanted a rainbow painted on their cheek. 

Best tactic to get them out of bed! 

If we talked about it being pride day and what it means, than it comes across as “it’s different” and yes when they are old enough to understand I will explain the meaning behind why we celebrate pride. 

But in our house the LGBTQ is no different than anything else,
It is accepted, it is loved and it is respected, The way we should treat anybody and everybody.
So, today is rainbow day because we love all the colours of the rainbow. 

Categories
Motherhood

Motherhood & Chronic Illness

I often get asked,
“how do you do it? I don’t have kids but I have the illness and it kicks my ass on the daily and I just have myself to take after.” 

I don’t know how I do it to be honest, but I do know there’s no other option, theres no other choice.
It’s a job that has no sick days, No vacation, no emergency back up days.
It’s a job that when you’re contemplating staying in bed for 10 more minutes, you have littles ones around you that are asking when breakfast is and where are their clean socks. 

Its not about how I do it, or how I manage it. It’s about realizing that there are so much bigger things in the world that matter and that need your undivided attention than a disease that is slowly trying to take over your body.

And don’t get me wrong, I have my bad awful can’t manage can’t do it you couldn’t pay me enough to move days.
And those days it turns into 20% on my end and 80% on my husbands end. 

Those are the days if my husband isn’t home or he is working an off shift, my in-laws step in to take care of the 80% that I can’t manage.

Having 2 very busy boys is a lot, trust me. They are so close in age with each other which is wonderful and they love each other as brothers but choose to be best friends, their relationship melts my heart. 

Luca is 4.5 and Lorenzo is 6.5.

These years with my kids aren’t going to last forever and they have grown up so much so quickly already, I will be dammed if I let this disease take so much control over my life that I allow it to rip the memories with my kids away from me.
In my world that isn’t an option, and I don’t think any one or anything should be able to have that much control. 

My whole motto in life and dealing with endometriosis has been;
The moment I give it enough power to control my every day life is the moment I give up.

And unfortunately that day is creeping closer and closer.

Categories
Events

Endo March 2019

Today we did a thing;⁣
The first annual Guelph Endo March.⁣

The amount of love and support was beyond anyone’s expectations. ⁣

I would have been happy if 5 people showed up, but we had about a total of 60 people!
They came out, the wore yellow, they held signs, the walked the streets.

Walking past people on the street and handing out flyers, and seeing the look on peoples faces driving by was one of my favourite parts of the whole day.

Standing up in front of people I knew and people I didn’t know, and share my story was an amazing experience!
To have so many people I know and love come out to support me⁣ and to have people come out who I never met before and listen so intently to what I had to say, what I had to share, was truly amazing.

Thank you to everyone who came out today to our March.
Thank you to everyone who made it out to their local march. ⁣

Thank you to everyone raising awareness. ⁣
⁣This is the first of many things.

Things are changing.⁣

Categories
All Things Endo

Endo belly; whose with me?

⁣⁣
Today I had a revelation of sorts. ⁣
I’ve ALWAYS struggled with my body image. ⁣
I have a HORRIBLE relationship with food. ⁣
Its been an ongoing issue since I was 12 years old.

What this disease does on the inside, you can’t see it’s destructive ways. ⁣
However, once it creates so much inflammation and chaos it has no where to go but outward; in turn,⁣

I present to you:⁣
⁣The Endo Belly. ⁣

It’s painful, it’s annoying, it makes me feel 5 months pregnant and twice my body weight. ⁣But honestly, I am over it. ⁣

I don’t know if @thebirdspapaya has just been able to break my shell and get her wonderful and inspiring messages to resonate enough with me, but here I am. ⁣

In a crop top, in under pants, in my bathroom; owning it. ⁣
And I think I look pretty stinkin cute! ⁣

So I am over it, I am over the typical baggy sweaters and shirts I would normally aim for during a flare, to try and hide the fact that I look like I swallowed a basket ball. ⁣
This disease has taken so much already, and with the nice weather hopefully around the corner, this endo belly business is NOT stopping me from showing up and having an amazing summer with my family and friends. ⁣

Pool side, beach side, park side; you name it, I am there with all my endo belly glory, and pretty damn proud of it. ⁣

So this summer I want everyone to bring their bodies to the beach in all shapes sizes and forms, embrace what your body does for you each and every day.
Don’t miss out on memories because of your inner demons trying to tear you down.
This disease has taken enough life out of me up until now and I will be damned it if ruins my summer!

Endo belly is out in full force but its not raining on my parade!!! ⁣

Categories
Purpose

My Why

I have been having an internal chat with myself over the last couple days; about my WHY. ⁣

I’ve been asked recently as well by a few people in the medical industry about my WHY. ⁣

Why did I decide to become so vocal? ⁣
Why did I decide to document every shit thing happening in my life? ⁣
Why did I decide to be so open and honest about all that I experience? ⁣

This little girl in this photo is a huge portion of that why. ⁣

She looks up to me. ⁣
I am a huge influence for her. ⁣
She strives to be just like me when she gets older.⁣
She is not my daughter, but she is like a niece. ⁣

My why is for her and the 10% of girls JUST LIKE HER. ⁣

I hope to change the way this disease is diagnosed and treated for the generations of women coming up behind me. ⁣

I don’t want the generation behind me to have to face the 7-10 year diagnosed time frame.
I don’t want the generation behind me to be told over and over again that a hysterectomy  will cure them.
I don’t want the generations behind me to be mislead by your run of the mill OB-Gyn.

There is so much education that needs to be brought to light and brought to the table about proper care, the gold standard of care and a lot of women with the disease are unaware of it.
⁣I hope to bring awareness and advocacy of proper information and resources in order for these women to receive better care in a quicker time frame. ⁣

It only takes one drop of rain to create a ripple. ⁣

We suffered enough, let’s turn our experiences into a benefit for those behind us who don’t know what they are up against. ⁣

Categories
Purpose

The Start Of It All

There I was; only 14 years old.

Doubled over in pain, not understanding what could possibly cause this much pain. I couldn’t feel my legs, it felt like the vice that my dad had bolted to his work bench in the garage was squeezing itself onto my lower back. 

I had to sit down on a bench in the middle of the mall because I could barley breathe through it. My friend who was with me at the time went to the drug store to buy me some ibuprofen and promised in 20 minutes it would solve my problems;

It did not. 

This was the beginning of my very long and traumatic journey with a disease called endometriosis. 

The one upside I felt I had in this entire journey of mine was the fact that my mother was diagnosed with this disease years prior, so when I started to exhibit the same symptoms we at least knew what we were up against. 

What we didn’t realize was the amount of frustration we would have to face with trying to convince doctors that this is in fact what it was.
The amount of misinformation out there that doctors have on this disease is the reason it takes on average 7-10 years for a woman to be diagnosed.
No wonder it takes that long, I spent 5 years in and out of doctors offices telling them what was wrong with me and they still wouldn’t believe me. 

So for a person to walk into a doctors office exhibiting all of these awful symptoms but yet has no idea what is the cause behind it, and the doctor not having a clue either, you can imagine how frustrating it all is.

At the age of 19 I finally got my surgical diagnosis, and as sad as it is to be told you have an incurable disease and essentially we know why you feel like this but cant really fix it, it was great knowing. 

I finally had an answer.
I finally knew my mom and I were right after all those years.
I finally could work on a proper hormone therapy treatment to help.
I finally moved 1 step.

I didn’t realize it was the first step of a million.